Clinical trial • Phase III • Cardiology|Rare Disease
Vutrisiran for Hereditary (hATTR) transthyretin amyloidosis with cardiomyopathy|Wild-type (wtATTR) transthyretin amyloidosis with cardiomyopathy
Phase III trial of Vutrisiran for Hereditary (hATTR) transthyretin amyloidosis with cardiomyopathy|Wild-type (wtATTR) transthyretin amyloidosis with cardi…
Overview
- Trial Therapeutic Area
- Cardiology|Rare Disease
- Trial Disease
- Hereditary (hATTR) transthyretin amyloidosis with cardiomyopathy|Wild-type (wtATTR) transthyretin amyloidosis with cardiomyopathy
- Trial Stage
- Phase III
- Drug Modality
- Oligonucleotide|Other
- Orphan Drug
- Yes
Key dates
- Initial CTIS Submission Date
- 04-10-2024
- First CTIS Authorization Date
- 18-11-2024
Trial design
Randomised, open-label, placebo (0.9% sodium chloride) administered as subcutaneous injection every 12 weeks ±7 days up to 36 months (placebo comparator arm). active treatment arm: vutrisiran 25 mg sc every 12 weeks ±7 days up to 36 months.-controlled Phase III trial in Croatia, Sweden, Poland and others.
- Randomised
- Yes
- Open Label
- Yes
- Comparator
- Placebo (0.9% Sodium chloride) administered as subcutaneous injection every 12 weeks ±7 days up to 36 months (placebo comparator arm). Active treatment arm: Vutrisiran 25 mg SC every 12 weeks ±7 days up to 36 months.
- Target Sample Size
- 250
- Trial Duration For Participant
- 1095
Eligibility
Recruits 250 The record indicates vulnerable population selection. Inclusion criterion 9 requires the patient "is able to understand and is willing and able to comply with the study requirements and to provide written informed consent." Country-specific subject information and informed consent forms are provided (multiple country versions). No explicit assent process for minors is specified in the available criteria..
- Pregnancy Exclusion
- 27. Female patient is pregnant, planning a pregnancy, or breast-feeding
- Vulnerable Population
- The record indicates vulnerable population selection. Inclusion criterion 9 requires the patient "is able to understand and is willing and able to comply with the study requirements and to provide written informed consent." Country-specific subject information and informed consent forms are provided (multiple country versions). No explicit assent process for minors is specified in the available criteria.
Inclusion criteria
- {"criterion_text":"- 1. Age 18 to 85 years\n- 10. Patient agrees to sign a separate medical records release form, where allowed by local regulations, to allow for the collection of information on vital status, cardiac transplant procedures, leftventricular assist device placement, and hospitalizations, for the duration of the DB Period of the study.\n- 2. Documented diagnosis of ATTR amyloidosis with cardiomyopathy, classified as either hATTR amyloidosis with cardiomyopathy or wtATTR amyloidosis with cardiomyopathy\n- 3. Medical history of HF with at least 1 prior hospitalization for HF (not due to arrhythmia or a conduction system disturbance treated with a permanent pacemaker) OR clinical evidence of HF (with or without hospitalization) manifested by signs and symptoms of volume overload or elevated intracardiac pressures (eg, elevated jugular venous pressure, shortness of breath or signs of pulmonary congestion on x-ray or auscultation, peripheral edema) that currently requires treatment with a diuretic.\n- 4. Patient meets one of the following criteria: a. Tafamidis-naïve and not actively planning to commence treatment with tafamidis during the first 12 months following randomization (per exclusion criterion #7); or b. On tafamidis (Note: must be on-label use of commercial tafamidis per an approved cardiomyopathy indication and dose in the country of use)\n- 5. Patient is clinically stable, with no CV-related hospitalizations within 6 weeks prior to randomization, as assessed by the Investigator.\n- 6. Screening NT-proBNP >300 ng/L and <8500 ng/L; in patients with permanent or persistent atrial fibrillation, Screening NT-proBNP >600 ng/L and <8500 ng/L.\n- 7. Able to complete ≥150 meters on the 6-MWT at Screening.\n- 8. Have a Karnofsky performance status of ≥60%.\n- 9. Patient is able to understand and is willing and able to comply with the study requirements and to provide written informed consent."}
Exclusion criteria
- {"criterion_text":"- 1. Has known primary amyloidosis(AL amyloidosis)or leptomeningeal amyloidosis\n- 19. Has persistent elevation of systolic (>170 mmHg) or diastolic (>100 mmHg) blood pressure that is considered uncontrolled by physician\n- 2. NYHA Class IV heart failure; or NYHA Class III heart failure AND ATTR Amyloidosis Disease Stage 3 (defined as NT-proBNP >3000 ng/L and eGFR <45 ml/min)\n- 20. Has untreated hypo- or hyperthyroidism\n- 21. Has an active infection requiring systemic antiviral, antiparasitic or antimicrobial therapy that will not be completed prior to dosing (Day 1)\n- 22. Prior or anticipated (during the first 12 months after randomization) heart, liver or other organ transplant or implantation of left-ventricular assist device\n- 23. History of multiple drug allergies; or history of allergic reaction to any component of or excipient in the study drug\n- 24. History of intolerance to SC injection(s) or significant abdominal scarring that could potentially hinder study drug administration or evaluation of local tolerability\n- 25. Has other medical conditions or comorbidities which, in the opinion of the Investigator, would interfere with study compliance or data interpretation\n- 26. Is not willing to comply with the contraceptive requirements during the study period\n- 27. Female patient is pregnant, planning a pregnancy, or breast-feeding\n- 10. Currently taking doxycycline, ursodeoxycholic acid or tauroursodeoxycholic acid; if previously on any of these agents, must have completed a 30-day wash-out prior to dosing (Day 1)\n- 28. Unwilling or unable to limit alcohol consumption throughout the course of the study\n- 29. History of alcohol abuse, within the last 12 months before Screening, in the opinion of the Investigator\n- 3. Has a polyneuropathy disability (PND) Score IIIa, IIIb, or IV (requires cane or stick to walk due to polyneuropathy, or is wheelchair bound) at the Screening visit\n- 30.History of illicit drug abuse within the past 5 years that in the opinion of the Investigator would interfere with compliance with study procedures or follow-up visits\n- 4. Has any of the following laboratory parameter assessments at Screening: a. AST or ALT levels >2.0 × ULN; b. Total bilirubin >2.0 × ULN. Patients with elevated total bilirubin that is secondary to documented Gilbert's syndrome are eligible if the total bilirubin is <2 × ULN); c. International normalized ratio (INR) >1.5 (unless patients were on anticoagulant therapy in which case excluded if INR >3.5)\n- 5. Has eGFR <30 mL/min/1.73 m2 (using the modification of diet in renal disease [MDRD] formula) at Screening\n- 6. Has known human immunodeficiency virus infection; or evidence of current or chronic hepatitis C virus or hepatitis B virus infection\n- 7. Tafamidis-naïve patients (per inclusion criterion #4a) for whom the Investigator actively plans or anticipates commencing treatment with tafamidis either during the Screening Period or the first 12 months following randomization, taking into consideration clinical status, patient preference and/or commercial availability of tafamidis\n- 8. Received prior TTR-lowering treatment (including revusiran, patisiran or inotersen) or participated in a gene therapy trial for hATTR amyloidosis\n- 9. Currently taking diflunisal; if previously on this agent, must have at least a 30-day wash-out prior to dosing (Day 1)\n- 11. Unwilling to avoid any concurrent treatment with diflunisal, ursodeoxycholic acid/tauroursodeoxycholate/doxycycline, or TTR lowering agents (eg, patisiran, inotersen)\n- 12. Current or future participation in another investigational device or drug study, scheduled to occur during this study, or has received an investigational agent or device within 30 days (or 5 half-lives of the investigational drug, whichever is longer) prior to dosing (Day 1). In the case of investigational TTR stabilizer drugs, washout for 3 months prior to dosing (Day 1) is required; this does not apply to patients who are on tafamidis at baseline (inclusion criterion #4)\n- 13. Requires treatment with or is unwilling to avoid any concurrent treatment with nondihydropyridine calcium channel blockers (eg, verapamil, diltiazem)\n- 14. Other non-TTR cardiomyopathy, hypertensive cardiomyopathy, cardiomyopathy due to valvular heart disease, or cardiomyopathy due to ischemic heart disease (eg, prior myocardial infarction with documented history of cardiac enzymes and ECG changes) that the Investigator feels is a significant contributor or the predominant cause of the patient's heart failure\n- 15. Unstable congestive heart failure (CHF) (including patients who require adjustment of existing diuretics or addition of new diuretics at time of Screening for purposes of achieving optimal management of CHF)\n- 16. Had acute coronary syndrome or unstable angina within the past 3 months\n- 17. Has history of sustained ventricular tachycardia or aborted ventricular fibrillation\n- 18. Has history of atrioventricular nodal or sinoatrial nodal dysfunction for which a pacemaker is indicated but will not be placed"}
Endpoints
Primary endpoints
- {"endpoint_text":"- Composite outcome of all-cause mortality and recurrent CV events (CV hospitalizations and urgent heart failure [HF] visits) in both the overall population and the vutrisiran monotherapy subgroup (defined as patients not on tafamidis at study baseline).","definition_or_measurement_approach":"Composite endpoint defined as all-cause mortality plus recurrent cardiovascular events (cardiovascular hospitalizations and urgent heart failure visits); evaluated in the overall population and in the vutrisiran monotherapy subgroup (patients not on tafamidis at baseline)."}
Secondary endpoints
- {"endpoint_text":"- Change from baseline in 6-minute walk test (6-MWT)","definition_or_measurement_approach":"Change from baseline in distance (meters) walked on the 6-minute walk test at specified follow-up timepoints."}
- {"endpoint_text":"- Change from baseline in the Kansas City Cardiomyopathy QuestionnaireOverall Summary (KCCQ-OS)","definition_or_measurement_approach":"Change from baseline in KCCQ Overall Summary score (patient-reported measure of health status/quality of life) at prespecified timepoints."}
- {"endpoint_text":"- All-cause mortality","definition_or_measurement_approach":"Vital status assessed during study follow-up; death from any cause counted as event."}
- {"endpoint_text":"- Change from baseline in NYHA Class","definition_or_measurement_approach":"Change from baseline in New York Heart Association functional class as assessed by investigator at scheduled visits."}
Recruitment
- Planned Sample Size
- 250
- Recruitment Window Months
- 72
- Consent Approach
- Written informed consent is required from each participant (inclusion criterion: participant "is able to understand ... and to provide written informed consent"). Country-specific main ICFs and related ICFs are provided (examples in Croatian, Swedish, Polish, Danish, Spanish, English (IE), Dutch, German, Lithuanian, Portuguese, French and others as indicated in the document list). Separate pregnancy ICFs, pregnancy-partner ICFs and caregiver/partner forms are also provided where applicable. No explicit assent process for minors is specified in the available documents.
Geography
- Total Number Of Sites
- 41
- Total Number Of Participants
- 441
Croatia
- Earliest CTIS Part Ii Submission Date
- 26-09-2024
- Latest Decision Or Authorization Date
- 03-12-2024
- Processing Time Days
- 68
- Number Of Sites
- 1
- Number Of Participants
- 3
Sites
- Site Name
- University Hospital Centre Zagreb
- Department Name
- Department for Cardiovascular Diseases
- Contact Person Name
- Davor Miličić
- Contact Person Email
- predstojnik.skz@kbc-zagreb.hr
Sweden
- Earliest CTIS Part Ii Submission Date
- 27-09-2024
- Latest Decision Or Authorization Date
- 18-11-2024
- Processing Time Days
- 52
- Number Of Sites
- 2
- Number Of Participants
- 14
Sites
- Site Name
- University Hospital Of Northern Sweden
- Department Name
- Hjartcentrum Kliniskt Forskningscentrum
- Contact Person Name
- Bjorn Pilebro
- Contact Person Email
- Bjorn.Pilebro@regionvasterbotten.se
- Site Name
- Sahlgrenska University Hospital-Vaestra Goetalandsregionen
- Department Name
- Hjartmottagningen Kardiologens Forskningsenhet
- Contact Person Name
- Entela Bollano
- Contact Person Email
- entela.bollano@vgregion.se
Poland
- Earliest CTIS Part Ii Submission Date
- 27-09-2024
- Latest Decision Or Authorization Date
- 24-11-2024
- Processing Time Days
- 58
- Number Of Sites
- 2
- Number Of Participants
- 37
Sites
- Site Name
- Synexus Polska Sp. z o.o.
- Department Name
- Oddział w Gdańsku
- Contact Person Name
- Milena Kowalewska-Celejewska
- Contact Person Email
- milena.kowalewska@globalaes.com
- Site Name
- Uniwersytecki Szpital Kliniczny Im. Jana Mikulicza-Radeckiego We Wroclawiu
- Department Name
- Centrum Chorób Serca
- Contact Person Name
- Ewa Jankowska
- Contact Person Email
- ewa.jankowska@umed.wroc.pl
Denmark
- Earliest CTIS Part Ii Submission Date
- 26-09-2024
- Latest Decision Or Authorization Date
- 19-11-2024
- Processing Time Days
- 54
- Number Of Sites
- 2
- Number Of Participants
- 30
Sites
- Site Name
- Odense University Hospital
- Department Name
- Hjertemedicinsk Afdeling
- Contact Person Name
- Jens Flensted Lassen
- Contact Person Email
- jens.flensted.lassen@rsyd.dk
- Site Name
- Aarhus University Hospital
- Department Name
- Hjertemedicinsk Afdeling B
- Contact Person Name
- Steen Poulsen
- Contact Person Email
- steepoul@rm.dk
Spain
- Earliest CTIS Part Ii Submission Date
- 26-09-2024
- Latest Decision Or Authorization Date
- 19-11-2024
- Processing Time Days
- 54
- Number Of Sites
- 6
- Number Of Participants
- 100
Sites
- Site Name
- Bellvitge University Hospital
- Department Name
- Cardiology Department
- Contact Person Name
- José González Costello
- Contact Person Email
- jgonzalez@bellvitgehospital.cat
- Site Name
- Hospital Universitario Juan Ramon Jimenez
- Department Name
- Cardiology Department
- Contact Person Name
- Ana Manovel Sánchez
- Contact Person Email
- anaj.manovel.sspa@juntadeandalucia.es
- Site Name
- Hospital Universitario Puerta De Hierro De Majadahonda
- Department Name
- Cardiology Department
- Contact Person Name
- Pablo García Pavia
- Contact Person Email
- pablogpavia@yahoo.es
- Site Name
- Hospital Universitario Virgen De La Victoria
- Department Name
- Cardiology Department
- Contact Person Name
- José Manuel García Pinilla
- Contact Person Email
- pinilla@secardiologia.es
- Site Name
- Hospital Universitari Vall D Hebron
- Department Name
- Internal Medicine Department
- Contact Person Name
- Fernando Martínez Valle
- Contact Person Email
- fernando.martinez@vallhebron.cat
- Site Name
- Hospital Universitario Basurto
- Department Name
- Cardiolog Department
- Contact Person Name
- Ainara Lozano-Bahamonde
- Contact Person Email
- ainara.lozanobahamonde@osakidetza.eus
Ireland
- Earliest CTIS Part Ii Submission Date
- 26-09-2024
- Latest Decision Or Authorization Date
- 18-11-2024
- Processing Time Days
- 53
- Number Of Sites
- 2
- Number Of Participants
- 6
Sites
- Site Name
- St James's Hospital
- Department Name
- Cardiology
- Contact Person Name
- Ross Murphy
- Contact Person Email
- RTMurphy@STJAMES.IE
- Site Name
- Mater Misericordiae University Hospital
- Department Name
- Cardiology
- Contact Person Name
- Niall Mahon
- Contact Person Email
- Niall.mahon@ucd.ie
Netherlands
- Earliest CTIS Part Ii Submission Date
- 30-09-2024
- Latest Decision Or Authorization Date
- 21-11-2024
- Processing Time Days
- 52
- Number Of Sites
- 2
- Number Of Participants
- 22
Sites
- Site Name
- Universitair Medisch Centrum Groningen
- Department Name
- Cardiology
- Contact Person Name
- Peter van der Meer
- Contact Person Email
- p.van.der.meer@umcg.nl
- Site Name
- Universitair Medisch Centrum Utrecht
- Department Name
- Cardiology
- Contact Person Name
- Marish Oerlemans
- Contact Person Email
- m.oerlemans@umcutrecht.nl
Germany
- Earliest CTIS Part Ii Submission Date
- 31-10-2024
- Latest Decision Or Authorization Date
- 22-11-2024
- Processing Time Days
- 22
- Number Of Sites
- 6
- Number Of Participants
- 50
Sites
- Site Name
- Universitaetsklinikum Essen AöR
- Department Name
- Klinik für Kardiologie und Angiologie
- Contact Person Name
- Tienush Rassaf
- Contact Person Email
- tienush.rassaf@uk-essen.de
- Site Name
- Universitaet Muenster
- Department Name
- Herz-MRT-Zentrum, Sektion für Herzbildgebung Klinik für Kardiologie I
- Contact Person Name
- Ali Yilmaz
- Contact Person Email
- ali.yilmaz@ukmuenster.de
- Site Name
- Synexus Clinical Research GmbH
- Department Name
- Synexus Clinical Research GmbH
- Contact Person Name
- Katrin Arelin
- Contact Person Email
- katrin.arelin@globalaes.com
- Site Name
- Universitaetsklinikum Wuerzburg AöR
- Department Name
- Deutsches Zentrum für Herzinsuffizienz Würzburg
- Contact Person Name
- Caroline Morbach
- Contact Person Email
- morbach_c@ukw.de
- Site Name
- Universitaetsklinikum Heidelberg AöR
- Department Name
- Klinik für Kardiologie, Angiologie, Pneumologie
- Contact Person Name
- Arndt Kristen
- Contact Person Email
- arnt.kristen@med.uni-heidelberg.de
- Site Name
- Universitaetsmedizin Goettingen
- Department Name
- Herzzentrum Göttingen
- Contact Person Name
- Frauke Czepluch
- Contact Person Email
- f.czepluch@med.uni-goettingen.de
Austria
- Earliest CTIS Part Ii Submission Date
- 30-09-2024
- Latest Decision Or Authorization Date
- 25-11-2024
- Processing Time Days
- 56
- Number Of Sites
- 2
- Number Of Participants
- 30
Sites
- Site Name
- Medical University Of Vienna
- Department Name
- Medizinische Universität Universitätsklinik für Innere Medizin II, Abteilung für Kardiologie
- Contact Person Name
- Johannes Kastner
- Contact Person Email
- johannes.kastner@meduniwien.ac.at
- Site Name
- Stadt Wien Wiener Gesundheitsverbund
- Department Name
- c/o Klinik Floridsdorf Abteilung für Kardiologie
- Contact Person Name
- Andreas Schober
- Contact Person Email
- andreas.schober@gesundheitsverbund.at
Lithuania
- Earliest CTIS Part Ii Submission Date
- 26-09-2024
- Latest Decision Or Authorization Date
- 20-11-2024
- Processing Time Days
- 55
- Number Of Sites
- 1
- Number Of Participants
- 10
Sites
- Site Name
- Lietuvos sveikatos mokslu universiteto ligonine Kauno klinikos
- Department Name
- Hospital of Lithuanian University of Health Sciences Kaunas Clinics, Cardiology clinic
- Contact Person Name
- Egle Ereminiene
- Contact Person Email
- eglerem@yahoo.com
Belgium
- Earliest CTIS Part Ii Submission Date
- 26-09-2024
- Latest Decision Or Authorization Date
- 19-11-2024
- Processing Time Days
- 54
- Number Of Sites
- 4
- Number Of Participants
- 9
Sites
- Site Name
- O.L.Vrouw van Troost
- Department Name
- Cardiology
- Contact Person Name
- Tom Sarens
- Contact Person Email
- tomsarens@hotmail.com
- Site Name
- Hopital Erasme
- Department Name
- Cardiology
- Contact Person Name
- Antoine Bondue
- Contact Person Email
- antoine.bondue@hubruxelles.be
- Site Name
- Universitair Ziekenhuis Gent
- Department Name
- Cardiology
- Contact Person Name
- Michel De Pauw
- Contact Person Email
- michel.depauw@ugent.be
- Site Name
- UZ Leuven
- Department Name
- Cardiology
- Contact Person Name
- Johan Van Cleemput
- Contact Person Email
- johan.vancleemput@uzleuven.be
Hungary
- Earliest CTIS Part Ii Submission Date
- 01-10-2024
- Latest Decision Or Authorization Date
- 20-11-2024
- Processing Time Days
- 50
- Number Of Sites
- 1
- Number Of Participants
- 30
Sites
- Site Name
- Semmelweis University
- Department Name
- Belgyógyászati és Hematológiai Klinika
- Contact Person Name
- Zoltán POZSONYI
- Contact Person Email
- pozsonyizoltanimre@gmail.com
Portugal
- Earliest CTIS Part Ii Submission Date
- 01-10-2024
- Latest Decision Or Authorization Date
- 18-11-2024
- Processing Time Days
- 48
- Number Of Sites
- 3
- Number Of Participants
- 40
Sites
- Site Name
- Unidade Local De Saude Do Alto Ave E.P.E.
- Department Name
- Cardiology Deparment
- Contact Person Name
- Olga Azevedo
- Contact Person Email
- olgazevedo@hospitaldeguimaraes.min-saude.pt
- Site Name
- Unidade Local De Saude De Santo Antonio E.P.E.
- Department Name
- Cardiology Deparment
- Contact Person Name
- Patricia Rodrigues
- Contact Person Email
- pfdrodrigues@gmail.com
- Site Name
- Unidade Local De Saude De Santa Maria E.P.E.
- Department Name
- Cardiology Deparment
- Contact Person Name
- Dulce Brito
- Contact Person Email
- dulcebrito59@gmail.com
Norway
- Earliest CTIS Part Ii Submission Date
- 27-09-2024
- Latest Decision Or Authorization Date
- 22-11-2024
- Processing Time Days
- 56
- Number Of Sites
- 1
- Number Of Participants
- 20
Sites
- Site Name
- Oslo University Hospital HF
- Department Name
- Oslo Universitetssykehus HF Rikshospitalet, Kardiologisk Forskning
- Contact Person Name
- Kaspar Broch
- Contact Person Email
- sbbrok@ous-hf.no
Czechia
- Earliest CTIS Part Ii Submission Date
- 26-09-2024
- Latest Decision Or Authorization Date
- 20-11-2024
- Processing Time Days
- 55
- Number Of Sites
- 2
- Number Of Participants
- 4
Sites
- Site Name
- University Hospital Olomouc
- Department Name
- I. interní klinika - kardiologická
- Contact Person Name
- Renáta Aiglová
- Contact Person Email
- renata.aiglova@fnol.cz
- Site Name
- Synexus Czech s.r.o.
- Contact Person Name
- Iva Škarpová
- Contact Person Email
- iva.skarpova@synexus.com
France
- Earliest CTIS Part Ii Submission Date
- 25-09-2024
- Latest Decision Or Authorization Date
- 19-11-2024
- Processing Time Days
- 55
- Number Of Sites
- 4
- Number Of Participants
- 36
Sites
- Site Name
- Assistance Publique Hopitaux De Paris (Creteil)
- Department Name
- Cardiology
- Contact Person Name
- Thibaud DAMY
- Contact Person Email
- thibaud.damy@aphp.fr
- Site Name
- Centre Hospitalier Universitaire De Toulouse
- Department Name
- Cardiology
- Contact Person Name
- Pauline Fournier
- Contact Person Email
- fournier.p@chu-toulouse.fr
- Site Name
- Assistance Publique Hopitaux De Paris (Paris)
- Department Name
- Cardiology
- Contact Person Name
- Vincent Algalarrondo
- Contact Person Email
- vincent.algalarrondo@aphp.fr
- Site Name
- Centre Hospitalier Regional De Marseille
- Department Name
- Cardiology
- Contact Person Name
- Gilbert Habib
- Contact Person Email
- gilbert.habib@ap-hm.fr
Sponsor
Primary sponsor
- Full Name
- Alnylam Pharmaceuticals Inc.
- Organisation Type
- Pharmaceutical company
- Country Of Registered Address
- United States
Contract research organisations
- Name
- PPD Development LP
- Responsibilities
- Multiple operational roles (codes:1,12,2,5,8,9)
- Name
- Syneos Health Inc.
- Responsibilities
- Operational support (code:8)
- Name
- IQVIA Biotech LLC
- Responsibilities
- Operational support / services (code:10)
Third parties
- {"country":"United Kingdom","full_name":"Medical Research Network Limited","duties_or_roles":"Homecare Nursing Services","organisation_type":"Laboratory/Research/Testing facility"}
- {"country":"United States","full_name":"The Brigham And Women’s Hospital Inc.","duties_or_roles":"Cardiac Imaging Core Lab (ECHO), Central ECHO Analysis","organisation_type":"Hospital/Clinic/Other health care facility"}
- {"country":"United States","full_name":"Omnitrace Corp.","duties_or_roles":"Support collection of survival status information for subjects (primary endpoint)","organisation_type":"Non-Pharmaceutical company"}
- {"country":"Belgium","full_name":"PPD Global Central Labs","duties_or_roles":"code:4","organisation_type":"Pharmaceutical company"}
- {"country":"United States","full_name":"Gray Consulting Inc.","duties_or_roles":"Patient Travel & Reimbursement Services","organisation_type":"Pharmaceutical company"}
- {"country":"United States","full_name":"Fisher Clinical Services Inc.","duties_or_roles":"IP Packaging, Labeling, Storage and Distribution","organisation_type":"Pharmaceutical company"}
- {"country":"United States","full_name":"EPL Pathology Archives LLC","duties_or_roles":"Long-term Genetic Sample Storage","organisation_type":"Laboratory/Research/Testing facility"}
- {"country":"United States","full_name":"PPD Development LP","duties_or_roles":"Multiple operational roles (codes:1,12,2,5,8,9)","organisation_type":"Pharmaceutical company"}
- {"country":"United States","full_name":"Eresearchtechnology Inc.","duties_or_roles":"Central ECG Reading, Central ECG Analysis","organisation_type":"Pharmaceutical company"}
- {"country":"United States","full_name":"Quanterix Corp.","duties_or_roles":"neurofilament analysis","organisation_type":"Pharmaceutical company"}
- {"country":"United States","full_name":"Syneos Health Inc.","duties_or_roles":"code:8","organisation_type":"Pharmaceutical company"}
- {"country":"United States","full_name":"Suvoda LLC","duties_or_roles":"IRT (IXRS)","organisation_type":"Non-Pharmaceutical company"}
- {"country":"United States","full_name":"Cisys Inc.","duties_or_roles":"electronic Adjudication System","organisation_type":"Pharmaceutical company"}
- {"country":"Canada","full_name":"Charles River Laboratories Montreal ULC","duties_or_roles":"Labs analysis TTR and ADA; code:4","organisation_type":"Pharmaceutical company"}
- {"country":"United States","full_name":"Pyxant Labs Inc.","duties_or_roles":"PK Analysis","organisation_type":"Laboratory/Research/Testing facility"}
- {"country":"United States","full_name":"Colorado Prevention Center","duties_or_roles":"6-MWT Oversight","organisation_type":"Hospital/Clinic/Other health care facility"}
- {"country":"United States","full_name":"Iqvia Biotech LLC","duties_or_roles":"code:10","organisation_type":"Pharmaceutical company"}
- {"country":"Belgium","full_name":"SGS Belgium","duties_or_roles":"Randomization List; codes:6,7","organisation_type":"Pharmaceutical company"}
Investigational products
- Investigational Product Name
- Amvuttra 25 mg solution for injection in pre-filled syringe
- Active Substance
- Vutrisiran
- Modality
- Oligonucleotide
- Routes Of Administration
- Subcutaneous
- Route
- Subcutaneous
- Authorisation Status
- Authorised (EU marketing authorisation EU/1/22/1681/001)
- Orphan Designation
- Yes
- Starting Dose
- 25 mg
- Dose Levels
- 25 mg
- Frequency
- Every 12 weeks (once every 3 months)
- Maximum Dose
- 550 mg (maxTotalDoseAmount 550 mg)
- Investigational Product Name
- 0.9% Sodium chloride
- Modality
- Other
- Routes Of Administration
- Subcutaneous (placebo administered SC)
- Route
- Subcutaneous
- Authorisation Status
- Not applicable
- Frequency
- Every 12 weeks (placebo dosing matches active arm schedule)
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- ALXN2220 for Transthyretin amyloid cardiomyopathy (ATTR-CM)
- seralutinib for Pulmonary arterial hypertension (PAH)
- CRD-4730 for Catecholaminergic polymorphic ventricular tachycardia
- florbetaben (18F) for Cardiac amyloidosis|AL amyloidosis