Clinical trial • Phase II • Neurology

EMPASIPRUBART for Multifocal motor neuropathy

Phase II trial of EMPASIPRUBART for Multifocal motor neuropathy.

Overview

Trial Therapeutic Area
Neurology
Trial Disease
Multifocal motor neuropathy
Trial Stage
Phase II
Drug Modality
Monoclonal antibody

Key dates

Initial CTIS Submission Date
11-12-2023
First CTIS Authorization Date
06-02-2024

Trial design

Randomised, open-label, placebo to argx-117 iv (placebo comparator; no dose/schedule specified in record)-controlled Phase II trial in Netherlands, Germany, Belgium and others.

Randomised
Yes
Open Label
Yes
Comparator
Placebo to ARGX-117 IV (placebo comparator; no dose/schedule specified in record)
Target Sample Size
17

Eligibility

Recruits 17 Vulnerable population flag is selected. Participants must be capable of providing signed informed consent and must be able to read and write. Consent is provided by the participant (no paediatric assent procedures described)..

Pregnancy Exclusion
4. Pregnant or lactating or intend to become pregnant during the trial or within 15 months after last dose of the IMP.
Vulnerable Population
Vulnerable population flag is selected. Participants must be capable of providing signed informed consent and must be able to read and write. Consent is provided by the participant (no paediatric assent procedures described).

Inclusion criteria

  • {"criterion_text":"- Participants are eligible to be included in the trial only if all of the following criteria apply: 1. Capable of providing signed informed consent, and complying with protocol requirements. Participants must be able to read and write."}
  • {"criterion_text":"- 2. Must have completed the double-blinded treatment period of the ARGX-117-2002 trial and considered to be eligible for treatment with ARGX-117"}
  • {"criterion_text":"- 3a. Male participants: must use an acceptable contraceptive method that should be maintained at minimum until 15 months after last dose of Investigational Medicinal Product (IMP)."}
  • {"criterion_text":"- 3b. Female participants (women) of childbearing potential must have a negative urine pregnancy test at baseline before IMP can be administered."}

Exclusion criteria

  • {"criterion_text":"- Participants will be excluded from the trial if any of the following criteria apply: 1. Clinically significant uncontrolled active or chronic bacterial, viral, or fungal infection"}
  • {"criterion_text":"- 2. Clinical evidence of other significant serious diseases, have had a recent major surgery, or who have any other condition, in the opinion of the investigator, that could confound the results of the trial or put the participant at undue risk."}
  • {"criterion_text":"- 3. Currently participating in another interventional clinical study"}
  • {"criterion_text":"- 4. Pregnant or lactating or intend to become pregnant during the trial or within 15 months after last dose of the IMP."}

Endpoints

Primary endpoints

  • {"endpoint_text":"- Safety outcomes based on AE monitoring and other safety assessments (clinical laboratory tests)","definition_or_measurement_approach":"Based on adverse event monitoring and other safety assessments including clinical laboratory tests."}

Secondary endpoints

  • {"endpoint_text":"- 1. Modified Medical Research Council (mMRC) − Value and change from baseline in the mMRC-10 sum score − Proportion of participants showing a deterioration of at least 2 points in mMRC-10 sum score − Value and change from baseline in the mMRC-14 sum score − Proportion of participants showing a deterioration of at least 2 points in the mMRC-14 sum score","definition_or_measurement_approach":"mMRC-10 and mMRC-14 scores: value and change from baseline; proportion with ≥2 point deterioration."}
  • {"endpoint_text":"- − Value and change from baseline in the average score of the 2 most important muscle groups as assessed by the mMRC-14 sum score","definition_or_measurement_approach":"Average of the two most important muscle groups assessed via mMRC-14 sum score; value and change from baseline."}
  • {"endpoint_text":"- 2. Grip strength (GS) − Values, change, and percent change from baseline in GS − Proportion of participants with a decline of >30% in GS","definition_or_measurement_approach":"Grip strength measured; absolute, change and percent change from baseline; proportion with >30% decline."}
  • {"endpoint_text":"- 3. Values and change from baseline in the Rasch-built overall disability scale for MMN (MMN‐RODS)","definition_or_measurement_approach":"MMN‐RODS score: value and change from baseline."}
  • {"endpoint_text":"- 4. Values, change, and percentage change from baseline in the average time for the upper extremity (arm and hand) function (9-Hole Peg Test [9-HPT], or timed pegboard test)","definition_or_measurement_approach":"9-HPT or timed pegboard: average time for upper extremity function; value, change and percent change from baseline."}
  • {"endpoint_text":"- 5. Proportion of participants by level of severity on each dimension of EQ-5D-5L","definition_or_measurement_approach":"EQ-5D-5L dimensions: proportion by severity level."}
  • {"endpoint_text":"- 6. Value and change from baseline in EQ-5D-5L visual analog scale (VAS)","definition_or_measurement_approach":"EQ-5D-5L VAS: value and change from baseline."}
  • {"endpoint_text":"- 7. Values and change from baseline in the Chronic Acquired Polyneuropathy Patient-Reported Index (CAP-PRI)","definition_or_measurement_approach":"CAP-PRI: value and change from baseline (patient-reported)."}
  • {"endpoint_text":"- 8. Values and change from baseline in the 9-item Fatigue Severity Scale (FSS)","definition_or_measurement_approach":"FSS (9-item): value and change from baseline."}
  • {"endpoint_text":"- 9. Values of the Patient Global Impression of Change (PGIC) scale","definition_or_measurement_approach":"PGIC scores at visits."}
  • {"endpoint_text":"- 10. Proportion of participants by level of severity of MMN as assessed by the Patient Global Impression of Severity (PGIS)","definition_or_measurement_approach":"PGIS: proportion by severity level."}
  • {"endpoint_text":"- 11. Values for work-related and household chore activities of the Health-Related Productivity Questionnaire (HRPQ) at each visit: − Hours lost because of absenteeism − Hours lost because of presenteeism","definition_or_measurement_approach":"HRPQ: hours lost due to absenteeism and presenteeism at each visit."}
  • {"endpoint_text":"- − Total hours lost − Percent of scheduled hours lost because of absenteeism − Percent of scheduled hours lost because of presenteeism − Percent of scheduled hours lost in total","definition_or_measurement_approach":"Work productivity endpoints: total hours lost and percent of scheduled hours lost (absenteeism, presenteeism, total)."}
  • {"endpoint_text":"- 12. Serum concentrations and PK parameters for ARGX-117","definition_or_measurement_approach":"Serum concentration measurements and pharmacokinetic parameter calculation for ARGX-117."}
  • {"endpoint_text":"- 13.Values and change from baseline in free C2, total C2, and functional complement activity (CH50) over time","definition_or_measurement_approach":"Laboratory PD measurements of free C2, total C2, and CH50 over time; values and change from baseline."}
  • {"endpoint_text":"- 14. Incidence and prevalence of antidrug antibodies (ADA) against ARGX-117","definition_or_measurement_approach":"Immunogenicity testing: incidence and prevalence of ADA to ARGX-117."}
  • {"endpoint_text":"- 15. Values and change from baseline in free C2, total C2, and functional complement activity (CH50) over time","definition_or_measurement_approach":"Duplicate entry in source: laboratory PD measurements (as above)."}
  • {"endpoint_text":"- 16. Incidence and prevalence of antidrug antibodies (ADA) against ARGX-117","definition_or_measurement_approach":"Duplicate entry in source: ADA incidence and prevalence (as above)."}

Recruitment

Planned Sample Size
17
Recruitment Window Months
51
Consent Approach
Participants must provide signed informed consent and be capable of doing so; participants must be able to read and write. Subject information and informed consent forms are provided in country-specific languages (examples in documents: Dutch, German, English, French, Spanish, Polish, Italian). No paediatric assent procedures are described (adults only).

Geography

Total Number Of Sites
17
Total Number Of Participants
34

Netherlands

Earliest CTIS Part Ii Submission Date
11-01-2024
Latest Decision Or Authorization Date
01-07-2025
Processing Time Days
537
Number Of Sites
1
Number Of Participants
6

Sites

Site Name
Universitair Medisch Centrum Utrecht
Department Name
Neurology and Neurosurgery
Principal Investigator Name
Ludo Van der Pol
Principal Investigator Email
W.L.vanderPol@umcutrecht.nl
Contact Person Name
Ludo Van der Pol
Contact Person Email
W.L.vanderPol@umcutrecht.nl

Germany

Earliest CTIS Part Ii Submission Date
11-01-2024
Latest Decision Or Authorization Date
01-07-2025
Processing Time Days
537
Number Of Sites
2
Number Of Participants
4

Sites

Site Name
Universitätsklinikum Essen
Department Name
Klinik für Neurologie
Principal Investigator Name
Mark Stettner
Principal Investigator Email
mark.stettner@uk-essen.de
Contact Person Name
Mark Stettner
Contact Person Email
mark.stettner@uk-essen.de
Site Name
Universitätsmedizin Göttingen
Department Name
Klinik für Neurologie
Principal Investigator Name
Jana Zschüntzsch
Principal Investigator Email
j.zschuentzsch@med.uni-goettingen.de
Contact Person Name
Jana Zschüntzsch

Belgium

Earliest CTIS Part Ii Submission Date
11-01-2024
Latest Decision Or Authorization Date
02-07-2025
Processing Time Days
538
Number Of Sites
1
Number Of Participants
2

Sites

Site Name
AZ Sint-Lucas & Volkskliniek
Department Name
Neurology
Principal Investigator Name
Jan De Bleecker
Principal Investigator Email
jan.debleecker@azstlucas.be
Contact Person Name
Jan De Bleecker
Contact Person Email
jan.debleecker@azstlucas.be

Spain

Earliest CTIS Part Ii Submission Date
11-01-2024
Latest Decision Or Authorization Date
04-07-2025
Processing Time Days
540
Number Of Sites
3
Number Of Participants
8

Sites

Site Name
Hospital Universitario Y Politecnico La Fe
Department Name
Unidad de Enfermedades Neuromusculares
Principal Investigator Name
María Teresa Sevilla Mantecón
Principal Investigator Email
sevilla_ter@gva.es
Contact Person Name
María Teresa Sevilla Mantecón
Contact Person Email
sevilla_ter@gva.es
Site Name
Hospital De La Santa Creu I Sant Pau
Department Name
Servicio de Neurologia
Principal Investigator Name
Luis Antonio Querol Gutiérrez
Principal Investigator Email
lquerol@santpau.cat
Contact Person Name
Luis Antonio Querol Gutiérrez
Contact Person Email
lquerol@santpau.cat
Site Name
Hospital Universitari Vall D Hebron
Department Name
Unidad de Enfermedades Neuromusculares y Raras
Principal Investigator Name
Raúl Juntas Morales
Principal Investigator Email
raul.juntas@vallhebron.cat
Contact Person Name
Raúl Juntas Morales
Contact Person Email
raul.juntas@vallhebron.cat

Poland

Earliest CTIS Part Ii Submission Date
11-01-2024
Latest Decision Or Authorization Date
07-07-2025
Processing Time Days
543
Number Of Sites
1
Number Of Participants
3

Sites

Site Name
Medical University Of Warsaw
Department Name
Klinika Neurologii
Principal Investigator Name
Anna Kostera-Pruszczyk
Principal Investigator Email
anna.kostera-pruszczyk@wum.edu.pl
Contact Person Name
Anna Kostera-Pruszczyk

Austria

Earliest CTIS Part Ii Submission Date
11-01-2024
Latest Decision Or Authorization Date
07-07-2025
Processing Time Days
543
Number Of Sites
1
Number Of Participants
1

Sites

Site Name
Medical University Of Vienna
Department Name
Department of Neurology
Principal Investigator Name
Jakob Rath
Principal Investigator Email
jakob.rath@meduniwien.ac.at
Contact Person Name
Jakob Rath
Contact Person Email
jakob.rath@meduniwien.ac.at

France

Earliest CTIS Part Ii Submission Date
11-01-2024
Latest Decision Or Authorization Date
30-06-2025
Processing Time Days
536
Number Of Sites
4
Number Of Participants
4

Sites

Site Name
Centre Hospitalier Universitaire De Nice
Department Name
Service de Neurologie / Centre de Référence des Maladies Neuromusculaires et SLA
Principal Investigator Name
Sabrina Sacconi
Principal Investigator Email
sacconi.s@chu-nice.fr
Contact Person Name
Sabrina Sacconi
Contact Person Email
sacconi.s@chu-nice.fr
Site Name
Centre Hospitalier Universitaire De Bordeaux
Department Name
Service de Neurologie et Maladies Neuromusculaires
Principal Investigator Name
Gwendal Le Masson
Principal Investigator Email
gwendal.le-masson@chu-bordeaux.fr
Contact Person Name
Gwendal Le Masson
Site Name
Assistance Publique Hopitaux De Paris
Department Name
Service de Neurophysiologie Clinique
Principal Investigator Name
Karine Viala
Principal Investigator Email
karine.viala@aphp.fr
Contact Person Name
Karine Viala
Contact Person Email
karine.viala@aphp.fr
Site Name
Centre Hospitalier Universitaire De Lille
Department Name
Hôpital Roger Salengro Service de Neurologie A
Principal Investigator Name
Céline Tard
Principal Investigator Email
celine.tard@chru-lille.fr
Contact Person Name
Céline Tard
Contact Person Email
celine.tard@chru-lille.fr

Italy

Earliest CTIS Part Ii Submission Date
11-01-2024
Latest Decision Or Authorization Date
27-02-2026
Processing Time Days
778
Number Of Sites
4
Number Of Participants
6

Sites

Site Name
Azienda Ospedaliero Universitaria Pisana
Department Name
UOC Neurologia - Ambulatorio Malattie Neuromuscolari
Principal Investigator Name
Michelangelo Mancuso
Principal Investigator Email
michelangelo.mancuso@unipi.it
Contact Person Name
Michelangelo Mancuso
Contact Person Email
michelangelo.mancuso@unipi.it
Site Name
Ospedale San Raffaele S.r.l.
Department Name
Dipartimento di Neurologia IRCCS Ospedale San Raffaele
Principal Investigator Name
Stefano Carlo Previtali
Principal Investigator Email
previtali.stefano@hsr.it
Contact Person Name
Stefano Carlo Previtali
Contact Person Email
previtali.stefano@hsr.it
Site Name
Humanitas Research Hospital
Department Name
U.O. Neuroimmunologia e Malattie Neuromuscolari
Principal Investigator Name
Eduardo Nobile Orazio
Principal Investigator Email
eduardo.nobile@unimi.it
Contact Person Name
Eduardo Nobile Orazio
Contact Person Email
eduardo.nobile@unimi.it
Site Name
Azienda Ospedaliero-Universitaria Sant Andre
Department Name
U.O.S Malattie Neuromuscolari
Principal Investigator Name
Stefania Morino
Principal Investigator Email
stefania.morino@ospedalesantandrea.it
Contact Person Name
Stefania Morino

Sponsor

Primary sponsor

Full Name
Argenx
Organisation Type
Pharmaceutical company
Country Of Registered Address
Belgium

Contract research organisations

Name
Cytel Inc.
Responsibilities
Biostats, IDMC
Name
Endpoint Clinical Inc.
Name
Eresearchtechnology Inc.
Responsibilities
ECG analysis/ review eCOA/ePRO
Name
IQVIA Limited
Responsibilities
Pharmacovigilance
Name
Cerba Research
Responsibilities
Primary/ surrogate endpoint test
Name
WCG Clinical Inc.
Responsibilities
Training portal for investigational sites; safety reporting to sites (Safety Vigilance).
Name
Parexel International (IRL) Limited
Name
PPD Development LP
Responsibilities
Vendor Management
Name
Celerion Switzerland AG
Responsibilities
PK and immunogenicity (ADA, Nab) analysis
Name
Sanquin Diagnostiek B.V.
Responsibilities
PD analysis (total C2, CH50)
Name
SYRINX Bioanalytics Oy
Responsibilities
PD analysis (free C2)

Third parties

  • {"country":"United States","full_name":"Cytel Inc.","duties_or_roles":"Biostats, IDMC","organisation_type":"Non-Pharmaceutical company"}
  • {"country":"United States","full_name":"Endpoint Clinical Inc.","duties_or_roles":"","organisation_type":"Pharmaceutical company"}
  • {"country":"United States","full_name":"Eresearchtechnology Inc.","duties_or_roles":"ECG analysis/ review eCOA/ePRO","organisation_type":"Pharmaceutical company"}
  • {"country":"Germany","full_name":"Azenta Germany GmbH","duties_or_roles":"Long term storage of study samples","organisation_type":"Pharmaceutical company"}
  • {"country":"United Kingdom","full_name":"IQVIA Limited","duties_or_roles":"Pharmacovigilance","organisation_type":"Pharmaceutical company"}
  • {"country":"Belgium","full_name":"Cerba Research","duties_or_roles":"Primary/ surrogate endpoint test","organisation_type":"Laboratory/Research/Testing facility"}
  • {"country":"United States","full_name":"WCG Clinical Inc.","duties_or_roles":"Training portal for investigational sites; safety reporting to sites (Safety Vigilance).","organisation_type":"Pharmaceutical company"}
  • {"country":"Ireland","full_name":"Parexel International (IRL) Limited","duties_or_roles":"","organisation_type":"Pharmaceutical company"}
  • {"country":"Finland","full_name":"SYRINX Bioanalytics Oy","duties_or_roles":"PD analysis (free C2)","organisation_type":"Pharmaceutical company"}
  • {"country":"Netherlands","full_name":"Sanquin Diagnostiek B.V.","duties_or_roles":"PD analysis (total C2, CH50)","organisation_type":"Laboratory/Research/Testing facility"}
  • {"country":"Switzerland","full_name":"Celerion Switzerland AG","duties_or_roles":"PK and immunogenicity (ADA, Nab) analysis","organisation_type":"Pharmaceutical company"}
  • {"country":"United States","full_name":"Unisphere Travel Ltd. Inc.","duties_or_roles":"patient travel and reimbursement","organisation_type":"Non-Pharmaceutical company"}
  • {"country":"United States","full_name":"PPD Development LP","duties_or_roles":"Vendor Management","organisation_type":"Pharmaceutical company"}

Investigational products

Investigational Product Name
ARGX-117
Active Substance
EMPASIPRUBART
Modality
Monoclonal antibody
Routes Of Administration
Intravenous use
Route
Intravenous
Authorisation Status
Authorised
Investigational Product Name
Placebo to ARGX-117 IV
Modality
Other

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